Videos - What's Your Story?
What's your story?
Each of us has a story to tell of our Meniere's journey.
Below are stories from various Meniere's sufferers e.g. bilateral with two implants, a registered nurse, adult personal trainer, author, singer and more
Share these stories with family and friends to help them understand.
Information for Family and Friends (Meniere’s Society UK)
https://www.menieres.org.uk/information-and-support/day-to-day/information-for-family-and-friends
If you would like to share your story contact me on dizzyanne.wfps@gmail.com
How to Navigate the World with Hearing Loss
Fiona Murphy
Fiona is a deaf poet and essayist. Her work has been published in Kill Your Darlings, Overland, Griffith Review and the Big Issue, among other publications. In 2019, she was awarded the Overland Fair Australia Essay Prize and the Monash Undergraduate Creative Writing Prize. In 2018, she was shortlisted for the Richell Prize and highly commended by the Wheeler Centre Next Chapter program.
Fiona said:
"I believe deaf people are the best listeners in the world':
"Deaf people can teach hearing people how to listen"
Here is the video link:
Fiona wrote a book "The Shape of Sound".
https://www.textpublishing.com.au/books/the-shape-of-sound
See this article for International day for People with a Disability.
https://www.abc.net.au/everyday/music-critic-fiona-murphy/103242656
Kate on Gentamicin
Kate has kindly shared her story with us.
Many of us ask about Gentamicin.
This six minute video is well told as to why Kate chose the gentamicin path.
Dizzy Anne
Jenny
Jenny is 54 years old and had her first vertigo attack at the age of 20.
At that time there was no internet nor available information so she had no idea what to do. However, Jenny never tired of finding out why this was happening to her.
She had connected with a journalist who wrote her story and as a result of her story she was contacted by people with the same symptoms. It was then that she realised she was not alone.
You will learn a lot from Jenny who I am happy to say no longer has vertigo episodes.
Junran
In Junran's video he said: "There is something beautiful in the solidarity among a group of people going through the same ordeal"
Esther
In Esther's video she said:
"I am hoping my journey will give you some guidance throughout your journey"
Dizzy Anne
My story is about managing my anxiety, Gentamicin and living a healthy active lifestyle
"Don't focus on what you can't do but on what you can do" https://youtu.be/b_aVxa0uNCA
Julieann - Writer, Educator, Artist
Topic: Reason for Hope & It's My Life ... Please let me choose Speaker:
Julieann WallaceWriter, educator, artist and advocate for Meniere’s Disease Julieann has had Meniere’s for 25 years and throughout her journey she has maintained a positive approach. In 2004 she had a gentamicin injection destroyed her balance cells in her MD ear and through vestibular physiotherapy she relearnt her new normal. She was recently fitted with a cochlear implant. She is an advocate for Meniere’s Disease. 100% of book profits “The Colour of Broken” are donated to research to finding a cure for Meniere's disease. Also, the proceeds from her journals go to Meniere's Research. She has created a series of artworks “Captive” representing the turbulent journey of diagnosis of any incurable disease, in her case, Meniere’s disease. Her sequel to “The Colour of Broken” will be released in 2021(FYI the screen froze in some parts (this is common problem with webinars) and there was minor technical problem before the second power point presentation. This does not take anything away from Julieann’s presentation.) You can view this webinar on the link below
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