Each of us has a story and our guide us through our Meniere's Disease journey. Below are stories from various Meniere's sufferers e.g. bilateral with two implants, a registered nurse, adult personal trainer, author, singer and more
Share these stories with family and friends to help them understand. Information for Family and Friends (Meniere’s Society UK)https://www.menieres.org.uk/information-and-support/day-to-day/information-for-family-and-friends
If you would like to share your story contact me on email@example.com
Scroll down to learn about our members stories:
Celene McNeil - Independent Augiologist, Richard Rundle - Runs the Ballarat Suppport Group
Juliet - her partner started Meniere's Research Fund, Glenda is bilateral, Chris is a personal trainer, Diane is a nurse, Paul had numerous drop attacks, June is a singer, Julieann is a writer and artist, Esther diagnosed in 2000 waiting for the cure, Mathew has a supportive workplace and an unknown author!
Meniere's - share your story
Food is medicine – your body is fuelled by what you eat
Celene McNeill of Healthy Hearing & Balance Care, Bondi Junction is a well known independent audiologist with a special interest in Meniere’s disease, tinnitus and other chronic auditory and vestibular disorders.
After Celene watched Laura Fisher’s webinar about managing Meniere’s through diet, Celene said “Laura brought to light my old beliefs that appropriate nutrition and lifestyle are the key to improve quality of life of those experiencing the symptoms of Meniere’s disease.”
Although Celene does not have Meniere’s disease she has other health issues which she now manages through appropriate nutrition, exercise and meditation.
Richard is bilateral.
After cochlear implant in 2013 Richard took over as coordinator for the Ballarat Support Group which he continues today.
Richard said: "The Cochlear Implants have been one of the most life changing experiences for me and I am
forever grateful for them"
Bruce Kirkpatrick OAM started the Meniere’s Research Fund because he wanted to find out more about Meniere’s Disease.
The Meniere’s Research Fund was a not for profit fund raising group established in 2001. It was established for the sole purpose of supporting research into Meniere's disease at Sydney Medical School, the University of Sydney.
This laboratory is the first in the world dedicated entirely to Meniere’s Disease.
We can all thank Bruce for his tireless fundraising efforts to support Meniere’ research.
Why did Bruce start the fund? Because of Juliet!
Glenda is bilateral, she lost her hearing and now has two cochlear implants.
Glenda tells us: "The cause of my Deafness was Meniere's" “I am what I am ……. And I consider myself a very blessed person!”“I am what I am…… And I will always be a deaf person!”
Chris Morrow is a qualified Mature Age adult Trainer Personal Trainer who has Meniere’s Diasease. She teaches mature aged adults fitness from 60 onwards. Chris is 69 and says she is not an easy taskmaster. Attendees have to work towards their fitness. Her classes are based on falls prevention and improving quality of life.
Dianne was a registered nurse who has bilateral Meniere’s. Dianne was 58 when she was diagnosed with Meniere’s 13 years ago. " .... It is a daily challenge for all of us whether unilateral or bilateral. I deal with the symptoms as they happen and really try to give it as little of my day as possible. When it all becomes too much, I have used behaviour therapy with some success."
" ... At the time of my drop attacks it was suggested I have Gentamicin injections. This would have reduced or eliminated these attacks but I chose to ride it out as my balance was still very good and I knew it would have compromised my cycling and old age balance. I had a total of 16 drop attacks from July 2013 to Sept 2016. "
"... As a singer I was often concerned should I lose hearing in both ears. As singers are right ear dominant I was still able to pitch perfectly despite diminished hearing in the left ear. During my singing career of thirty years, approximately 500 performances and 60 productions I only missed one performance as a result of Ménière’s. I often wonder if adrenaline has a part to play in the control of this condition."
"So, please don't judge me unless you've been in my shoes."
This story has been shared on various websites and goes back more than 10 years. Author and date unknown. Share this with family and friends.
Julieann is an author who was diagnosed with Meniere's Disease in 1995. She is an advocator of MD and has written books "The Colour of Broken" to raise awareness, profits of which are donated to medical research at MRFI. "For the future, I’ll keep on searching, researching, and writing. "It’s time to find a cure"See Julianne's bloghttps://myshadowmenieres.wordpress.com/2019/11/03/it-will-change-your-life-1/
Esther was diagnosed in 2000. "I feel any relief from my chronic imbalance may only come from a balance device or implant to restore the equilibrium of both ears. I am therefore hoping that budding inventors, innovators, scientists, researchers etc. will take up the initiative and fast track a device in order to reduce or eliminate the chronic imbalance."
Mathew noticed there was a problem in 1997. His next episode was in 2006 and in 2007 he was diagnosed with Meniere’s. “Throughout my journey I have been very lucky with beautiful love and support from my partners and my son and daughters. They have been my rock and not sure that I would have gotten through without them. Work has been amazingly supportive but I feel like lately their patience has run out . “
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